This. Is. SO important. Despite that some would consider me's a heathern, I tenaciously believe our sense of spirituality and need for many (including myself) to connect to something greater than ourselves is a fundamental human right. For too long, faith communities have been denying our disAbility population that right. Yes. You read that right. Others of you who live within the disAbility and are reading this are vigorously shaking your heads and sayin': "Yeah, got that right."
The numbers are depressingly astronomical: 75 percent. That's seventy-five percent of families who would attend a faith community…But. Do. Not. They do not because they are invisible, ignored, asked to leave, misunderstood, and sometimes even cannot get in because of lack of physical accessibility. We're talking about God here, people! Access! Access! Inclusion! Faith for All! Families and individuals with disAbilities have the right and the need to be included within faith communities. For Christians: WWJD? (Interestingly, for social reasons, my daughter attends a local version of a national ministry of the impressively led YoungLife called Capernaum. I'm totally touched and impressed that the inspiration for the name of this YoungLife branch is Capernaum, the city. My cob-webbed memories of Sunday school lessons (remember the old-timely, large, richly colored flip-chart illustrations?) had to be dusted off and reminded that Capernaum–thought it sounded familiar–was the city in the Bible story where men lowered an "infirmed" man on a stretcher from the roof of the building where Jesus was speaking. Talk about accessibility issues! The man's community went to great links to make sure their friend with a bit of a challenge had the same right as everyone else crowded into that clay hut that day. Cool.
Not. Cool. That centuries later, our families are faced with challenges of inclusion in the centers of faith where so many draw spiritual sustenance. Happy fact, however, is…its' changing! In 14 years, I've seen spits, spurts, stops and starts of unified efforts in Nashville to educate faith communities of the needs and how to address them. But there's serious momentum going now. A critical mass. And, one of my favorite drivers of this local movement is Thomas Boehm–a Messianic Jew from a prominent Nashville Jewish family–who founded Faith for All. October 11, in conjunction with Vanderbilt Kennedy Center, which has also taken a serious initiative (because it affects families' quality of life). Yay! Also note an August 27 short workshop more specific to autism and inclusive religious education by the folks at TRIAD*, below. [They know a lot about autism!]
The above is "now," but my story was "then" and still too many others'….When I was married to The Wuzband, we turned to our faith community for solace in the pain of our daughter's new diagnosis. We were met with. Silence. We learned only after we left the church that our Sunday School members wanted to reach out to us. They just didn't know what to say. Listen. People!: Say. SOMETHING! Silence is deafening! (Was that politically correct-disAbility speak? Maybe not.) There were several years in one church when I tried to get the ball rolling, recruit volunteers and train them. This was all while in the throes of coordinating and running everything else imaginable for my special needs daughter. I finally threw in the towel and spent many years not attending a church (when I wanted to be,) with later some moderate success followed by disappointments at other churches and a spiritual center. Get it, please: families need respite. They need the ability to sit in peace, like the other congregants around them. And if they are a couple, they deserve to be with one another. I do not view mother in the nursery, swapping off with Daddy an option every other Sunday. C'mon. What are we asking? And what do spiritual communities believe and how are we carrying out what we believe? Huh?
Do the right thing. The spiritual thing. The Christian thing. The Faith Community thing. Include all people in your community. Attend these workshops and conferences. For more info, click here:
AND
Second Annual Disability and Congregational Inclusion Conference in here in Nashville on October 11, 2011. Co-Hosted by Faith for ALL & VKC. (No web publicity was posted online yet at this writing, but here is a link to the VKC Disabilities, Religion, and Spirituality page. If you want more information, meantime, you can contact Courtney Evans Taylor, M.Div. (courtney.taylor@Vanderbilt.Edu), and she'll email you when registration opens. The address for the collaborating agency, click here: Faith for ALL.
I fancy that posts like these tend to get passed around and shared an extra bit. Great. Please do! That would be mighty inclusive and change-agent of you….
good work!
Thanks, Gregory. You know how much I love your daily eblasts! ( http://conta.cc/qvOADd )
Wow, Leisa. Wow.
I am pleased to say that our church, Christ Presbyterian, in Nashville has an INCREDIBLE ministry for special needs kids and their families. Here’s a link if you are interested to check it out: http://www.christpres.org/connect/children/childrens-special-needs/
And I TOTALLY love the story of the 4 friends carving a hole in the roof to lower their friend. 😉
Excellent post. I appreciate your perspective so much!
And I forwarded a link of this to our special needs ministry coordinator.
Thank you x 2, Mary, and hey there, hon. I know the special needs mom who spurred the ministry there.
Leisa –
I love your call to action!
I have heard fantastic things about YoungLife’s Capernaum…I need to follow up and do interview/feature about them.
I hope that these conferences/workshops get fantastic attendance (and I think they will). Right now I can’t keep up with the demand for teaching and help on for better church inclusion…such a wonderful challenge to have.
Thanks for years of patience. I know the response in the faith community is a day late and a dollar short, but it is finally moving in the right direction. Thanks for all you have done to kick up the dust.
I can’t wait to meet you!
Amy
Well, then, Amy, I’m glad my pissy-pants rant didn’t put at least you off! Ha! Thanks and thanks for what you’ll do. I’ll be in touch about our impending rendezvous. Looking forward!
Hi Leisa!
I just saw this on Arms Open Wide. We’re soon to build a larger building at our church and I’m sending the info to our priest.
http://www.inclusioninworship.org/Inclusion%20Awareness%20Day%20Workbook%20Eastern%20Orthodox%20Christians.pdf
God bless all you do!
Margie
Thanks & hello, Margie. I’ll have to check that out. I couldn’t find mention in the link–not sure that’s what had the mention. The link was most inclusive. Impressive. This post has gotten good response and I’m thinking of posting a follow-up. Faith communities need to know that contemporary best practices mean integration, not a segregated “ministry.” Many are getting that message, but the old model still exists and is touted as something new & grand. Each to his own, but just be informed, I say. Thanks again. Hope you are well!
We found love and acceptance in our church. It really hits home every time the pastor asks a rhetorical question in her sermon and every time, my autistic daughter shouts out the answer and every time, the congregation smiles. They truly love her unabashed honesty and never take offense when she blows past them toward the food table not having responded to a personal greeting.
Awesome, Connie! I heard a similar, wonderful story at a Presbyterian church here. The minister on Easter Sunday: “HE HAS RISEN!” (Repeated several times.) Friend’s son: Covers his ears & says “I know! I know. You’ve already said that!” 🙂 Priceless. A congregation that gets that? Even more so. :-)Good for you!